{"id":14137,"date":"2026-01-08T16:33:05","date_gmt":"2026-01-08T16:33:05","guid":{"rendered":"https:\/\/www.ockendenmaternityreview.org.uk\/apoio-as-familias-quando-uma-crianca-tem-uma-deficiencia\/"},"modified":"2026-10-20T14:47:18","modified_gmt":"2026-10-20T14:47:18","slug":"apoio-as-familias-quando-uma-crianca-tem-uma-deficiencia","status":"publish","type":"page","link":"https:\/\/www.ockendenmaternityreview.org.uk\/pt-pt\/apoio-as-familias-quando-uma-crianca-tem-uma-deficiencia\/","title":{"rendered":"Apoio \u00e0s fam\u00edlias quando uma crian\u00e7a tem uma defici\u00eancia"},"content":{"rendered":"\n<div class=\"wp-block-query support-groups is-layout-flow wp-block-query-is-layout-flow\"><ul class=\"wp-block-post-template is-layout-grid wp-container-core-post-template-is-layout-b0e31682 wp-block-post-template-is-layout-grid\"><li class=\"wp-block-post post-15750 support-group type-support-group status-publish has-post-thumbnail hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n<figure class=\"wp-block-post-featured-image\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Harrys-Hat-Logo-High-Res-300x300-1.png\" class=\"attachment-post-thumbnail size-post-thumbnail wp-post-image\" alt=\"\" style=\"object-fit:cover;\" srcset=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Harrys-Hat-Logo-High-Res-300x300-1.png 300w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Harrys-Hat-Logo-High-Res-300x300-1-150x150.png 150w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n\n<h2 class=\"wp-block-post-title\">Funda\u00e7\u00e3o Harry\u2019s para a Sensibiliza\u00e7\u00e3o para a Hidrocefalia (Harry\u2019s HAT)<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Somos a Harry\u2019s Hydrocephalus Awareness Trust (Harry\u2019s HAT), uma institui\u00e7\u00e3o de caridade nacional liderada por utilizadores, que apoia crian\u00e7as e as suas fam\u00edlias afetadas pela hidrocefalia. A hidrocefalia \u00e9 uma condi\u00e7\u00e3o em que se acumula l\u00edquido a mais no c\u00e9rebro. Embora possa ocorrer em qualquer idade, \u00e9 especialmente importante detet\u00e1-la cedo nos beb\u00e9s. Todos os anos, no Reino Unido, cerca de 1 em cada 770 beb\u00e9s desenvolve esta condi\u00e7\u00e3o e, embora n\u00e3o haja cura, a dete\u00e7\u00e3o precoce pode fazer uma grande diferen\u00e7a.  Como institui\u00e7\u00e3o de caridade, sensibilizamos para a doen\u00e7a, apoiamos os profissionais da linha da frente para que aprendam mais e, assim, melhorem os cuidados prestados aos doentes, e oferecemos apoio \u00e0s fam\u00edlias atrav\u00e9s de orienta\u00e7\u00e3o e apoio entre pares. Tamb\u00e9m fazemos campanha para uma maior sensibiliza\u00e7\u00e3o sobre a medi\u00e7\u00e3o do per\u00edmetro cef\u00e1lico dos beb\u00e9s atrav\u00e9s da nossa campanha \u00abGet-A-Head\u00bb.   <a href=\"https:\/\/harrys-hat.org\/get-a-head\/\">https:\/\/harrys-hat.org\/get-a-head\/<\/a><\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"http:\/\/www.harrys-hat.org\/\">www.harrys-hat.org<\/a><\/li>\n\n\n\n<li><a href=\"http:\/\/www.facebook.com\/harryshattrust\">www.facebook.com\/harryshattrust<\/a><\/li>\n\n\n\n<li><a href=\"mailto:info@harrys-hat.org\">info@harrys-hat.org<\/a><\/li>\n\n\n\n<li>07961001710<\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-15768 support-group type-support-group status-publish has-post-thumbnail hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n<figure class=\"wp-block-post-featured-image\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/FOOTPRINTS_Logo_FB_800x800px-1.jpg\" class=\"attachment-post-thumbnail size-post-thumbnail wp-post-image\" alt=\"\" style=\"object-fit:cover;\" srcset=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/FOOTPRINTS_Logo_FB_800x800px-1.jpg 800w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/FOOTPRINTS_Logo_FB_800x800px-1-300x300.jpg 300w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/FOOTPRINTS_Logo_FB_800x800px-1-150x150.jpg 150w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/FOOTPRINTS_Logo_FB_800x800px-1-768x768.jpg 768w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure>\n\n<h2 class=\"wp-block-post-title\">Centro de Educa\u00e7\u00e3o Condutiva Footprints<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">A Footprints \u00e9 uma institui\u00e7\u00e3o de caridade sediada em Nottingham que transforma a vida de crian\u00e7as com dificuldades de mobilidade e comunica\u00e7\u00e3o em toda a regi\u00e3o de East Midlands. No seu centro e gra\u00e7as ao apoio que lhes d\u00e3o, os beb\u00e9s e as crian\u00e7as desenvolvem as compet\u00eancias de que precisam para se desenvolverem e atingirem o seu potencial.<\/p>\n\n<p class=\"wp-block-paragraph\">O trabalho deles \u00e9 inspirado nos princ\u00edpios e pr\u00e1ticas da Educa\u00e7\u00e3o Condutiva, uma abordagem educativa hol\u00edstica desenvolvida para ajudar as crian\u00e7as com defici\u00eancia a aprenderem, de forma consciente, as compet\u00eancias para a vida que, para outras pessoas, surgem de forma mais natural. O trabalho deles incentiva o desenvolvimento de compet\u00eancias f\u00edsicas, de comunica\u00e7\u00e3o, sociais, sensoriais, de autonomia e cognitivas.<\/p>\n\n<p class=\"wp-block-paragraph\">A Footprints trabalha em estreita colabora\u00e7\u00e3o com a crian\u00e7a e a sua fam\u00edlia num ambiente seguro, positivo e de apoio, para incentivar e motivar o desejo de cada crian\u00e7a de realizar tarefas. Ao mesmo tempo, d\u00e1 \u00e0s fam\u00edlias o conhecimento, a confian\u00e7a e a for\u00e7a necess\u00e1rios para lidarem com as defici\u00eancias com que a crian\u00e7a vive e para compreenderem como podem ajudar.<\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"http:\/\/www.footprintscec.org\/\">www.footprintscec.org<\/a><\/li>\n\n\n\n<li><a href=\"mailto:enquiries@footprintscec.org\">enquiries@footprintscec.org<\/a><\/li>\n\n\n\n<li>0115 958 6641<\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-15652 support-group type-support-group status-publish hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n\n\n<h2 class=\"wp-block-post-title\">Governo do Reino Unido<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\"><br\/>A tua autarquia pode ajudar-te se tiveres um filho com defici\u00eancia, nomeadamente:<\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.gov.uk\/apply-short-term-care-for-child\">servi\u00e7os de estadias curtas<\/a><\/li>\n\n\n\n<li>programas de atividades de f\u00e9rias<\/li>\n\n\n\n<li>cuidados ao domic\u00edlio<\/li>\n\n\n\n<li>alguns apoios e adapta\u00e7\u00f5es<\/li>\n\n\n\n<li>ajuda financeira, por exemplo, dinheiro para ajudar a cobrir as despesas de desloca\u00e7\u00e3o para consultas no hospital<\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">A tua autarquia tem a obriga\u00e7\u00e3o de prestar estes servi\u00e7os ao abrigo <a href=\"http:\/\/www.legislation.gov.uk\/ukpga\/1989\/41\/contents\">da Lei da Crian\u00e7a de 1989.<\/a> Alguns s\u00e3o gratuitos \u2013 a autarquia pode pedir-te que contribuas para outros. Se achares que o teu filho pode ser eleg\u00edvel, entra em contacto com a equipa dos servi\u00e7os sociais <a href=\"https:\/\/www.gov.uk\/find-your-local-council\">da tua autarquia local<\/a>.<\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.gov.uk\/help-for-disabled-child\">https:\/\/www.gov.uk\/help-for-disabled-child<\/a> <\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-16299 support-group type-support-group status-publish has-post-thumbnail hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n<figure class=\"wp-block-post-featured-image\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"939\" src=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Together-for-short-lives-logo-1024x939-1.png\" class=\"attachment-post-thumbnail size-post-thumbnail wp-post-image\" alt=\"\" style=\"object-fit:cover;\" srcset=\"https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Together-for-short-lives-logo-1024x939-1.png 1024w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Together-for-short-lives-logo-1024x939-1-300x275.png 300w, https:\/\/www.ockendenmaternityreview.org.uk\/wp-content\/uploads\/2026\/03\/Together-for-short-lives-logo-1024x939-1-768x704.png 768w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n<h2 class=\"wp-block-post-title\">Juntos pela Short Lives<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">A \u00abTogether for Short Lives\u00bb \u00e9 a principal institui\u00e7\u00e3o de caridade do Reino Unido dedicada aos cuidados paliativos infantis. Atrav\u00e9s do nosso Centro de Apoio \u00e0s Fam\u00edlias e da nossa linha de apoio, oferecemos \u00e0s fam\u00edlias de crian\u00e7as gravemente doentes apoio e aconselhamento emocional, financeiro e pr\u00e1tico.<\/p>\n\n<ul class=\"wp-block-list\">\n<li>0808 8088 100<\/li>\n\n\n\n<li><a href=\"mailto:helpline@togetherforshortlives.org.uk\">helpline@togetherforshortlives.org.uk<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.togetherforshortlives.org.uk\/\">https:\/\/www.togetherforshortlives.org.uk<\/a><\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-16132 support-group type-support-group status-publish hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n\n\n<h2 class=\"wp-block-post-title\">Peeps HIE<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\"><br\/>A Peeps \u00e9 a \u00fanica institui\u00e7\u00e3o de caridade do Reino Unido dedicada a apoiar quem \u00e9 afetado pela HIE (Encefalopatia Hip\u00f3xica-Isqu\u00e9mica). Oferecemos apoio emocional, pr\u00e1tico e financeiro, bem como kits gratuitos para os pais em todas as unidades de neonatologia e apoio aos profissionais de sa\u00fade.<\/p>\n\n<p class=\"wp-block-paragraph\">Damos apoio aos pais, fam\u00edlias e amigos afetados pela HIE, promovendo a sensibiliza\u00e7\u00e3o para esta doen\u00e7a.<\/p>\n\n<p class=\"wp-block-paragraph\">Podes descarregar a nossa aplica\u00e7\u00e3o gratuita na App Store ou no Google Play, procurando por \u00abPeeps HIE\u00bb.<\/p>\n\n<ul class=\"wp-block-list\">\n<li>0800 987 5422<\/li>\n\n\n\n<li><a href=\"mailto:info@peeps-hie.org\">info@peeps-hie.org<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.peeps-hie.org\/\">https:\/\/www.peeps-hie.org<\/a><\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-15447 support-group type-support-group status-publish hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n\n\n<h2 class=\"wp-block-post-title\">Contacta a Family<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Institui\u00e7\u00e3o de caridade nacional que apoia fam\u00edlias de crian\u00e7as com defici\u00eancia, independentemente da sua condi\u00e7\u00e3o ou defici\u00eancia. Oferece informa\u00e7\u00e3o, aconselhamento e apoio.<\/p>\n\n<ul class=\"wp-block-list\">\n<li>020 7608 8700 <\/li>\n\n\n\n<li>0808 808 3555<\/li>\n\n\n\n<li><a href=\"mailto:info@cafamily.org.uk\">info@cafamily.org.uk<\/a> <\/li>\n\n\n\n<li> <a href=\"https:\/\/contact.org.uk\/\">https:\/\/contact.org.uk<\/a> <\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-16410 support-group type-support-group status-publish hentry support-grouping-support-for-families-when-a-child-has-a-disability\">\n\n\n<h2 class=\"wp-block-post-title\">A\u00e7\u00e3o pelas Crian\u00e7as<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Ajudamos crian\u00e7as e jovens com defici\u00eancia a ganharem confian\u00e7a e independ\u00eancia. Estamos ao lado das fam\u00edlias quando elas precisam de n\u00f3s. Estamos \u00e0 disposi\u00e7\u00e3o para ajudar, sempre que as fam\u00edlias precisarem de n\u00f3s. Os nossos 496 servi\u00e7os locais permitem-nos trabalhar no terreno, nas comunidades. Oferecemos uma vasta gama de apoio. Isso inclui ajuda para fam\u00edlias com crian\u00e7as com defici\u00eancia e servi\u00e7os para jovens cuidadores.  <\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"tel:0300%20123%202112\">0300 123 2112<\/a> <\/li>\n\n\n\n<li><a href=\"mailto:ask.us@actionforchildren.org.uk\">ask.us@actionforchildren.org.uk<\/a> <\/li>\n\n\n\n<li><a href=\"https:\/\/www.actionforchildren.org.uk\/\">https:\/\/www.actionforchildren.org.uk<\/a><\/li>\n<\/ul>\n<\/div>\n<\/li><li class=\"wp-block-post post-16151 support-group type-support-group status-publish hentry support-grouping-regional-services-nottingham support-grouping-support-for-families-when-a-child-has-a-disability\">\n\n\n<h2 class=\"wp-block-post-title\">A Funda\u00e7\u00e3o Little Ted<\/h2>\n\n<div class=\"entry-content wp-block-post-content is-layout-flow wp-block-post-content-is-layout-flow\">\n<p class=\"wp-block-paragraph\">A Funda\u00e7\u00e3o Little Ted d\u00e1 apoio \u00e0s fam\u00edlias que perderam um filho e \u00e0quelas com crian\u00e7as gravemente doentes.<\/p>\n\n<p class=\"wp-block-paragraph\">Oferecemos os Subs\u00eddios \u00abMemory Maker\u00bb para ajudar as fam\u00edlias a desfrutar de um dia especial fora de casa ou de uma viagem juntas, subs\u00eddios \u00abCost of Living\u00bb para fam\u00edlias com uma crian\u00e7a gravemente doente internada no hospital h\u00e1 mais de 7 dias e estadias na nossa linda caravana em Snowdonia, no Norte de Gales, tanto para fam\u00edlias enlutadas como para aquelas com crian\u00e7as gravemente doentes, para que possam fazer uma pausa do stress e das tens\u00f5es do dia a dia.<\/p>\n\n<p class=\"wp-block-paragraph\">Tamb\u00e9m estamos a colaborar com a The Foil Keepsake Co. para oferecer \u00e0s fam\u00edlias que apoiamos as mais belas impress\u00f5es em folha met\u00e1lica, de forma gratuita, quer se trate de fotografias digitalizadas, impress\u00f5es das m\u00e3os da fam\u00edlia ou das pegadas do teu filho. Entra em contacto connosco para saberes mais sobre estas impress\u00f5es e como as encomendar.<\/p>\n\n<ul class=\"wp-block-list\">\n<li><a href=\"http:\/\/www.thelittletedfoundation.org\/\">www.thelittletedfoundation.org<\/a><\/li>\n\n\n\n<li><a href=\"mailto:info@thelittletedfoundation.org\">info@thelittletedfoundation.org<\/a><\/li>\n<\/ul>\n<\/div>\n<\/li><\/ul>\n\n\n\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-support-groups.blade.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-14137","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Apoio \u00e0s fam\u00edlias quando uma crian\u00e7a tem uma defici\u00eancia - Ockenden Review<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ockendenmaternityreview.org.uk\/pt-pt\/apoio-as-familias-quando-uma-crianca-tem-uma-deficiencia\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Apoio \u00e0s fam\u00edlias quando uma crian\u00e7a tem uma defici\u00eancia - 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