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We are Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) a user-led national charity, which supports children and their families affected by hydrocephalus. Hydrocephalus is a condition where excess fluid builds up in the brain. While it can occur at any age, it’s particularly crucial to detect it early in infants. Every year in the UK around … Continued
Footprints is a Nottingham based charity which transforms the lives of children living with mobility and communication difficulties across the East Midlands. At their centre and through their support, babies and children develop the skills they need to thrive and achieve their potential. Their work is inspired by the principles and practices of Conductive Education, a … Continued
Your local council can provide help if you have a disabled child, including: Your council has a duty to provide these services under the Children Act 1989. Some are free of charge – the council might ask you to contribute towards others. If you think your child may qualify, contact the social services team at your local council.
Together for Short Lives is the UK’s leading charity for children’s palliative care. Through our Family Support Hub and helpline we provide families of seriously ill children with emotional, financial and practical support and advice.
Peeps is the only UK charity dedicated to supporting those touched by HIE (Hypoxic-Ischaemic Encephalopathy). We offer emotional, practical and financial support, as well as free parent packs for all neonatal units and support for healthcare professionals. We provide support to parents, families and friends affected by HIE, raising awareness of HIE. You can download … Continued
National charity to support families of disabled children, whatever their condition or disability. Provides information, advice and support.
We help disabled children and young people gain confidence and independence. We’re there for families when they need us. We’re on hand to help, when families need us. Our 496 local services allow us to work on the ground, in communities. We offer a huge range of support. This includes help for families with disabled … Continued
The Little Ted Foundation provides support to bereaved families following the loss of a child and those with seriously ill children. We provide Memory Maker Grants to help families enjoy a special day out or trip together, Cost of Living Grants for those families with a seriously ill child in hospital for longer than 7 … Continued
